tag:blogger.com,1999:blog-1310417489443581726.post130076184449780745..comments2023-04-17T22:09:06.354+12:00Comments on Sid's multiple myeloma journey: I’m on the Rev-Lite clinical trialSidhttp://www.blogger.com/profile/11123133496860716719noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1310417489443581726.post-33324859650357497362010-05-12T08:13:12.226+12:002010-05-12T08:13:12.226+12:00Wishing you all good luck with this trial Sid. We ...Wishing you all good luck with this trial Sid. We are sending positive vibes for a very good outcome and will be following closely.Susie Hemingwayhttps://www.blogger.com/profile/00936508273837230613noreply@blogger.comtag:blogger.com,1999:blog-1310417489443581726.post-86971897168130818552010-05-11T07:51:44.024+12:002010-05-11T07:51:44.024+12:00Thank you for your support folks. I never feel alo...Thank you for your support folks. I never feel alone.<br />Pat, if my disease is stable after cycle 5, dexamethasone is reduced to days 1 to 4 only.<br />SidSidhttps://www.blogger.com/profile/11123133496860716719noreply@blogger.comtag:blogger.com,1999:blog-1310417489443581726.post-62277675245299241162010-05-11T04:19:53.377+12:002010-05-11T04:19:53.377+12:00Hi Sid-
I forgot to add this: I just went back an...Hi Sid-<br />I forgot to add this: I just went back and checked your dex dosing schedule. Low dose? That is still a lot of dex! If and as you progress, bet you can get them to drop mg and/or frequency down. 20 mg once a week should be plenty--and is considered "low dose" here in the States. Good luck! <br />Pat KillingsworthPat and Pattie Killingsworthhttps://www.blogger.com/profile/10341161973130207926noreply@blogger.comtag:blogger.com,1999:blog-1310417489443581726.post-24371439056655085432010-05-11T04:17:32.298+12:002010-05-11T04:17:32.298+12:00Hi Sid-
What a great idea for a study! Low dose ...Hi Sid-<br /><br />What a great idea for a study! Low dose Revlimid has been working for me. My myeloma is slowly reappearing. Hard to say if it is because Rev doses are lower or if it would have happened anyway. We may never know. I'm just happy for you! I know it varies from patient to patient, but mg for mg, dollar for dollar, I feel Revlimid/low dose dex offers the best hope for long term response we have found so far. Might it help to add Doxil or Velcade and/or something else, too? Maybe. But that is a lot of poison to be taking if you don't have to, don't you think? Good luck, friend- Pat KillingsworthPat and Pattie Killingsworthhttps://www.blogger.com/profile/10341161973130207926noreply@blogger.comtag:blogger.com,1999:blog-1310417489443581726.post-54175661524296771792010-05-11T03:41:03.605+12:002010-05-11T03:41:03.605+12:00Sid, it's good to hear you are in the trial an...Sid, it's good to hear you are in the trial and I join your support team in intending that it gives you a chance to have another arrest of this thief.Sandyhttps://www.blogger.com/profile/02265922352726668243noreply@blogger.comtag:blogger.com,1999:blog-1310417489443581726.post-7883938699263681002010-05-11T00:13:29.582+12:002010-05-11T00:13:29.582+12:00Sid;
I am happy to learn that after a few interru...Sid;<br /><br />I am happy to learn that after a few interruptions, you are finally going forward with treatment. I hope it proves to be successful and that you can once again pursue an active lifestyle.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1310417489443581726.post-1912914065883368612010-05-11T00:12:49.578+12:002010-05-11T00:12:49.578+12:00Sid;
I am happy to learn that after a few interru...Sid;<br /><br />I am happy to learn that after a few interruptions, you are finally going forward with treatment. I hope it proves to be successful and that you can once again pursue an active lifestyle.Anonymousnoreply@blogger.com