Some good news today and a disappointment.
My Haematologist was unavailable, had the registrar instead. Valcade application has been declined by Pharmac again, more about that when I return from my holiday.
Now the good news.
August 2008 I had my second autologous stem cell transplant, early 2009 my IgG level started to rise.
After 4 months of cyclophosphamide and dexamethasone my IgG level has lowered from 24 down to 8.8 (880 USA). The normal range is 7 to 16 (700 to 1600 USA). This is the lowest it has been since first diagnose, then it was 80!!!
My bone pain and restricted movement have disappeared. I can drive to a car parking building, reach out to get my ticket pain free. When reversing my car I can twist my body and see where I am going. Road and shopping mall speed humps are now travelled at a faster speed, to hell with the suspension let’s have catch up time.
I can now run after and chase my grandchildren.
All my myeloma friends will understand what I am saying. With myeloma, when the good times are there, take them.
I feeeeel goooood.
Congratulations Sid! I am glad to hear the bone pain has vanished and your mobility is improved. Yes, enjoy the respite, which is arriving just in time for summer.
ReplyDeleteSid!
ReplyDeleteI am so happy to hear of your progress! That is WONDERFUL news!
I think of you often and consider you a kindred spirit in our joint struggle against this disease -- you have endured so much, and you maintain an admirable positivity. You have also been very kind in your comments to me, and I appreciate your support and good will.
I hope Pharmac gets their head out of their you-know-where and allows you to get Velcade, which as you know is probably the most important drug that exists against Myeloma. However you should (and I am sure you do) take great heart from the fact that you have responded so well to your current therapy! I did some cyclophosphamide and a lot of dex (still on it) so I know the side effects -- but they pale in comparison to the progress you have made! I am so happy for you!
I love that you feel good -- I love that you can play with your grandkids -- and I love that you are so resilient.
God bless you and yours, my friend.
Best,
Nick
www.nvdmyeloma.blogspot.com