Showing posts with label Internet. Show all posts
Showing posts with label Internet. Show all posts

Saturday, September 19, 2009

You searched for that!

On my blog there is a site meter that shows the number of visits I receive. I can access my site meter and read where any referrals come from. Referrals from Google or other search engines make interesting reading.
Here is a short list of recent search results that were directed to my blog “Sid’s multiple myeloma journey”. (My reference posting is in brackets)

Diagnose
Multiple myeloma stage 0
How do you diagnose myeloma? (Pre diagnose)
Myeloma and hypercoagulable state.
Vision and myeloma. (Central vein occlusion)
Myeloma plasmacytoma. (History)

Pain
Bone pain myeloma; (Myeloma bone pain)
Myeloma pain relief; (Myeloma bone pain)
Could pelvis pain be multiple myeloma? (Myeloma bone pain)
Bone pain in humerus. (Myeloma bone pain)
How intense is myeloma bone pain. (Myeloma bone pain)

Treatment
Multiple myeloma VAD treatment. (My VAD treatment for myeloma)
Myeloma stage 3 treatment plan.
Tempazepan medication. (VAD treatment for myeloma)
Myeloma stage I, survivor’s natural treatment;
Sore bum while on chemotherapy. (Transplant dry skin)
Cold sores and myeloma. (Transplant dry skin)

Transplant
Stem cell transplant multiple myeloma. (Transplant stem cell collection)
Harvest stem cells in myeloma. (Transplant stem cell collection)
Myeloma stem cell mobilisation. (Transplant stem cell collection)
Baldness after myeloma transplant; (Transplant hair loss)
Relapsed multiple myeloma transplant will it help and work
Autologous stem cell transplant diarrhoea. (Transplant diarrhoea)
Multiple myeloma dry skin on legs; (Transplant dry skin)

Final stage
Final stage of myeloma. (Confronting death)
End stage multiple myeloma. (Confronting death)
Death from myeloma. (Confronting death)

General
Myeloma aggression or swearing or moods. (Dexamethasone)
Myeloma blog; (Sid’s multiple myeloma journey)
Positive affirmation forums: (Myeloma bone pain)
Affirmation survivor. (Myeloma bone pain)
Eating with myeloma. (Transplant food)
Foods for myeloma. (Transplant food)
Lemon juice for myeloma. (Transplant food)

Wednesday, July 1, 2009

Myeloma blogs 1

If you are reading my blog (Sid’s multiple myeloma journey) you may be interested in other myeloma blogs. There are many ways to find these blogs.
Here are the three main sources that I use to access other myeloma blogs.

Planet myeloma
A myeloma blog roll created by Beth who is a myeloma legend, blogging since 2003.
At last count there were links to 36 myeloma blogs: June 2009
On the left of her blog roll are links to postings on listed blogs that have been created in the previous seven days, updated hourly.
I access planet myeloma daily to view the new postings.
Well done Beth, you have given the world wide myeloma family an excellent source of myeloma blogs.

Multiple myeloma forums
Created by Andy, April 2009.
On the home page is a list of featured blogs with a link to the entire myeloma blog collection, 35 so far: June 2009
While in myelomaforums web site have a look around. There is a good forum, featured articles, myeloma news, RSS feeds and much more.

Google
Access your Google
Type myeloma blogs/enter.

Or
Type myeloma blogs.
Pick down arrow at top
Select “more”
Select blogs.
For the latest postings pick “sort by date”.

Sunday, June 28, 2009

Myeloma beginner's help

The internet has a great source of information for newly diagnosed myeloma patients.
I recommend two articles found on the North Texas Myeloma support group web page. Unfortunately I cannot verify the date they were written or if they have been updated since publication, my emails were unanswered. Access the articles on the North Texas Myeloma support group web page by control/click the title.


Living successfully with multiple myeloma by Peter Tischler.
An informative article listing points that one must know and do to best ensure that one will survive myeloma with the quality of life one wants. I discovered Peter’s article in 2005, four years after my diagnose. Fortunately I had been doing most of what Peter suggests so just needed to fine tune my approach.
His main points are:
1. Take care of your kidneys.
2. Avoid infections.
3. Form a survivor team.
4. Don’t be a good patient.
5. Educate yourself. (this may be you, your partner or a family member)
6. Maintain your immune system.
7. Keep medical records.
8. Know your doctor’s limitations.
9. Early warning system – avoiding crises.

Myeloma 101 by Peter Tischler.
Myeloma 101 explains the basics of myeloma, diagnostic tests that are used and treatments for myeloma.
There are three levels of explanation: L1 simple explanation, L2 more detail, L3 more technical stuff.
Contents include:
Myeloma 101.
What is multiple myeloma?
The myeloma cell.
Myeloma protein.
The supporting cast.
How myeloma affects us.
Different types of myeloma.
Staging myeloma.
Testing – Blood tests.
Testing – Urine tests
Testing – Scans.
Testing – Other.
Treatment – Overview.
Treatment – Standard/frontline
Treatment – Maintenance.
Treatment – Transplants.

Monday, March 30, 2009

Follow my blog by email alert

Like to know how to follow my blog by receiving an email alert each time I make a new posting.
This comes from the Google Blogger Help Group:
http://groups.google.com/group/blogger-help/web/faqs

Feeds, promotion and search indexing.
4. How do I notify people of updates to my blog?
Blog Alert will send your family and friends daily email notifications when there are new posts to your blog. They don’t need an account. They just need your feed URL and their email address.

Click on this link to access Blog alert. http://www.shootthebreeze.net/blogalert/index.php

Enter this information into the dialogue box.
Feed URL; http://supersidnz.blogspot.com/atom.xml
Email; Your email address
Submit.
You will receive an email notification from Blog Alert for your confirmation.
After confirmation, when I make a new posting you will receive an email from Blog Alert that contains a link to my posting and the first 20 lines of my posting.
Click on my posting link to view the full posting.
Included in the email is a link to click if you no longer whish to receive Blog Alerts for my blog.

Friday, March 27, 2009

Follow my blog by feeds

Like to know how to follow my blog and too afraid to ask? Here is some help.
The assumption is your computer operating system is the same as mine; windows XP and internet explorer7. I am not sure how things work on other systems. See, I’m not perfect after all!
Following blogs by feeds is the easiest way I have found though it does rely on the blogs feeds being set up properly.

Feeds:
What is a site feed? An explanation is in this link.
http://help.blogger.com/bin/answer.py?hl=en&answer=41450

Before starting, pick favourites center. For those who have never done that before (and I know 2 who are in that basket) that’s the big yellow star at top left.
There you will see favourites/feeds/history. Feeds are where we look for any feeds.

How to subscribe to my blog:
Scroll down to the bottom of my blog.
Pick subscribe to: Posts (Atom)
In the new window that appears pick “subscribe to this feed”
In the Subscribe to this feed dialogue box:
Name: retain default or edit or write what you want.
Create in: Your choice, default feeds directory or create a sub folder.
Pick subscribe.
The blog feed page opens.
Close the feeds page.
Pick favourites center then feeds.
There you will see my blog name or the name you wrote.
My blog is scanned regularly by feed readers. When I have made a new posting my blog name will be in bold text.
My blog feed is set up to show all postings in full. Other blogs maybe set up differently.
Helpful comments are appreciated.

Saturday, March 21, 2009

Myelomaforum

There's a new kid in town, myelomaforum.
We all search the internet for myeloma information, here is a web site forum just getting off the ground dedicated solely to multiple myeloma.
I encourage you to have a look.
Here is their press release.

NEW FORUM DEDICATED STRICTLY TO MULTIPLE MYELOMA
Lakewood Ranch, FL – There's a new forum in town and it's dedicated strictly to Multiple Myeloma.
The forum was started by Andrew Smith of Lakewood Ranch, FL, after his uncle was diagnosed with Stage III Multiple Myeloma.
The forum was started to help promote communication among the Myeloma community; Allowing each member to make the most informed decisions possible about their treatment options and life style. By sharing information members can learn:
- What treatments are available in different locations.
- What doctors and organizations are most knowledgeable.
- What drugs and medication are available, safe, and effective.
- What diets work the best.
- What alternative treatments are available.
- How great people really are in this world.

For more information visit http://www.myelomaforums.com
-END